A Start

I had my first lucid realization of just how convoluted and contorted I had become a few months back.  I had been sitting on my bed, probably the safest and most secure place that exists for me.

The long, opaque, rich, velvet purple drapes were drawn over the sheers and their butterflies.  The trees in front of my house afforded another layer of privacy, and even had I stripped the windows of everything, they faced only into the very innocuous cul-de-sac I had lived on for more than two decades.

I can honestly say I like very much all of my neighbors; some have lived here longer than I have, others have only moved in within the last decade, but most of them I know well and feel comfortable enough with that were I in the throes of an acute psychiatric emergency, and really in need of help, I know I could go running to their doorsteps, despite the fact that they have no knowledge as to why I am my age and living still with my parents, why for years I didn’t leave the house very often, why for months I left only with one of my parents driving me. . .  You get the picture.  These neighbors may wonder, but they are all extremely kind souls whom I would trust with my life.

That day. . .  I really don’t remember any specifics of what I was doing or why I had to get up or what the plan had been.

What I do remember is this.  I was getting up to go to the bathroom and shower, but in my depression, my radical, all-encompassing, consuming depression, things didn’t go quite as planned.  I slid my feet to the floor next to my bed, but instead of standing up, I let the rest of my body pool onto a blanket that had fallen there.  I was so tired, weary in every cell in my body, weary in my mind, weary in my spirit, and a little rest was in order before I dragged myself to the bathroom and under the unrelenting spray of the hot water.

This is when it happened.  The minute I settled to the floor, I relaxed, I let out a breath I hadn’t the slightest idea I had been holding.  Between me and the windows now stood my bed and a bookcase, two sturdy, totally solid objects – a nice little wall that blocked even more entirely any view from the outside.  And I finally felt safe from the eyes of the world.

It didn’t take more than a second or two of sinking into the floor when the full magnitude of what had just occurred came to the forefront of my mind.

‘What the – I just – why in hell – there is something incredibly not right going on in my head.’

Allow me to translate that a bit.  I realized that the involuntary sense of calm that washed over me as I finally found myself a place to hide completely was not normal.  Even for me, it was an utterly foreign experience.  Because in order for that peace and safety and, ultimately, relaxation to hit me in that moment, in those circumstances, it meant that I must have been scared as hell, in a more subtle and deeply ingrained way than I had ever realized.

Paranoia.

I’d known that there was something deeply amiss in my fears and beliefs about people, the world at large, and my personal thoughts and reactions to all of it for some time.  I spoke at length to my good friend Em months before, trying to suss out whether what I had been experiencing was just a healthy (if unusual) mistrust, or something more.  She told me she thought I had a ‘paranoid personality’; more aware and concerned and distrustful of the world at large than most.  I guarded myself and my secrets rigidly, always questioned motives, and never took anything at face value.  Unusual, but just part of who I was.  No reason for alarm.

I couldn’t communicate to her then the changes that had begun more than a year prior.  I couldn’t communicate to her how much more this was, how deeply in the thrall of this monster in my mind I in fact was, because I didn’t know.

It wasn’t until that morning, cocooned on my floor, months later, that something snapped into place in my brain and I started to understand how severely and seriously delusional I had become.

That was it, that was the moment when I began to look at how incredibly distorted my mind had become.  It wasn’t only paranoia and delusions, there was more.  There was much, much more.

But that was the moment that changed everything for me.  That was the beginning of the end, though I didn’t know it at the time.

That was when I started to take myself back.

© Ruby Tuesday and I Was Just Thinking. . . 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

And It’s Hard Watching

“Wanna cry for you
Would it do any good
If I rained for you
It would just be water
And the nights with you
And the storms in your head
And you’re down, and you’re down
And I can’t lift you

I’m powerless to change
Your world
I’m powerless to stop
The hurt

But I’ll
I’ll give you my heart, give you my shoulder
I’ll give you my heart
Give you my shoulder
Over and over

Wanna run for you
Would it do any good
If I flew for you
You would still be standing
And it’s hard watching
‘Cause I’m part of you
And it’s hard not to
Not to know what I can do

I’m powerless to change
Your world
I’m powerless to stop
The hurt
I’m trying hard to be your
Tower of strength
I’m trying hard to bring you
Back to joy

I’ll give you my heart, give you my shoulder
I’ll give you my heart, give you my shoulder
When the night just cuts you through
And the dream is lost to you
When you’re worried and confused

I will
Give you my heart, give you my shoulder
I’ll give you my heart, give you my shoulder

Over and over

Time and again, give you my shoulder

I will
Give you my heart, give you my shoulder

I will
Time and again, over and over

I’ll give you my heart, give you my shoulder”

~ Heather Nova – ‘Heart and Shoulder’ ~

So by now you should know I love to tell my story with songs.  And by now I know that links often don’t get clicked (and honestly I’m a bit hazy about the ethics of inserting a video into a post).

This song, though. . . I remember listening to it, a million years ago it seems, though more accurately it was about 14.  I had a friend who was going through some shit, and this always made me think of that friend and my utter impotence to affect the situation.

Fast-forward to about three weeks ago.  I’m in the dark, lying in my bed sleepless, completely mad, with my music as my only companion, the one thing that could walk with me through the hours-long minutes and shield me from the worst places in my head.  Or, failing that, accompany me to them and see that I made it out intact.

And I heard this song.  And I thought, ‘I wonder if this is what it feels like to love me and watch me go through what I do.  Feeling utterly powerless, thinking that nothing you do could possibly help me.’

If I’m at all right on this one (and I know that I am), let me tell you something.  Having individuals in my life who love me, who have their own lives but care enough to keep up with mine, and whom I know are going to be there forever, no matter how crazy I may be, no matter what I go through. . .  I realized not so long ago what that truly means, to me personally.  The people on the front lines of the war that is my life get a lot of credit and thanks and gratitude, and rightly so, because they deserve it.  But so do all of you deserve it.  I don’t know but I would have been a million times lost were it not for your continued, ever watchful, loving presence in my life.

Thank you.

Moral of the story: “A true friend is someone who thinks that you are a good egg even though he knows that you are slightly cracked.” ~ Bernard Meltzer

(Any inaccuracies in lyric transcription are, of course, mine. I should be asleep right now, you know.)

© Ruby Tuesday and I Was Just Thinking. . . 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

Of All The Weeks In My Life, This Has Been One Of Them

And it has been very long.  Very, very long.  So long.  Long.

I think I am the opposite of most people who deal with manic-depression, but I’m not sure. I try to remember from the zillions of books I read on it, but that was so very long ago. . .

What happens with me is that when I am depressed, time rushes by, but when I am manic, it goes so very, very slowly.  Guess what this week turned out to be?

“I blink and half my life is over. . .” ~ Pete Winslow

I have never been a huge poetry-reader, I will confess that now.  Mostly I stuck to prose, especially in my younger years.  But beginning a poem in an anthology that one of my dearest and my oldest friend brought back to me when she visited the City Lights book store in San Francisco years ago. . .  (you know who you are now?  hi!).  That line began a poem and it jumped out and grabbed me and has stuck with me in a way so many and so few things have.

City Lights possibly might not mean a lot – anything – to some of you, but if you’re familiar with the Beats and specifically Lawrence Ferlinghetti, that’s his.  The progression is I spent pretty much all of my teens wildly enamored of Jack Kerouac.  I have made good acquaintance with Ginsberg and Cassidy and Burroughs and Holmes and so many more as well, but Kerouac will always be my true love there.  We are both “crazy mixed-up Catholic Buddhists,” though I only have a name for it because Jack gave name to it.

Thank you, Jack.

This week was, as I described to my psychiatrist Thursday when I saw him, florrid mania.  Psychotic, to boot. But then it had little tiny ultradian cycles woven inside the days and most especially the nights.  I would lay in my bed at night, knowing there would be no sleep, listening to music, Thinking, and hallucinating with four out of five senses.  Time stretches out for me in a very unreal way.  And I lay there and I Thought about so many things.  One of them was how I was having my parents drive me to my doctors’ appointments, because I didn’t feel like it was at all safe for me to be behind the wheel of a car.  A decade ago that would have been the first place I jumped in that state.

I have slowed down.  I have grown older.  I have grown wiser.  I have grown tired.

(For those of you keeping score, 72 hours awake, 4 of blissful sleep, 16 awake, between 30 minutes and 2 hours asleep – little hazy about what happened there – 14 mostly awake with a wee bit of dozy time, which is not real sleep but is closer to it than anything else I found, 4 of sleep, 6 more awake and that is now.  I know.  It’s confusing to me, too.)

By Wednesday afternoon I decided the best only course of action for me was to go silent, which I learned by hard lesson is what to do with myself in that state.  I stay completely off of the internet, and keep all other interaction very minimal, until I feel like I have most of my judgment returned.  If I ever disappear for a long period of time with no notice, that will most likely be why.

Thursday night the mania dissipated (though the insomnia didn’t) in a very nice and novel way.  Just a matter of minutes, it was like inside me some dials and slider switches were moved and I was restored to euthymia.  Euthymia.  Such a pretty word.

I think it was a combination of finding a bit of balance, and some clonazepam (Klonopin) that did it for me.  And yesterday morning my doctor wrote me for my favorite sleepies that didn’t kill me but should have (not a botched attempt there, a drug interaction that no one knew about nor figured out for months, despite me repeatedly blacking out – and I was the one who discovered it – but I’m off the other drug), which gave me my four hours of sleep last evening.  Which I needed, because while I haven’t come down this time into a full depression – yet – things got pretty desperate for me yesterday.

The wherefore of that is a little hard to explain, but it has to do with the lovely way I have of almost dissociating when I am so long with very little or no sleep and nicely manic, and no longer having that, being fully present in the reality of the moment.  And it has to do with how hard I work to insulate my mind, my mental state against anything that might further compromise it, even a little, and coming out of that cocoon-in-a-very-high-tower-with-no-door-and-briars-at-the-bottom.  That’s a good one.  It not only describes perfectly what I build around myself, but doesn’t it sound pretty much like hell to come out of?  It is.  I nailed that, and right off the cuff.  Love it.

Lastly, my desperate state had to do with one of the many moments of clarity I had while Thinking, actually this one deserves the designation of ‘epiphany’, that I found myself in during the whole episode.  I’m saving it for another time.  Maybe.

Moral of the story:  ”I’m a paranoid schizophrenic.  I am my own entourage.” ~ a delightfully misnomered quote, from the always lovable and neurotic John Cusak, in America’s Sweethearts

© Ruby Tuesday and I Was Just Thinking. . . 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

What Goes On?

You tell me.

I spent another night in the local ER because of panic so intense it was like nothing I have ever experienced.  I knew it was a panic attack, but that didn’t help.  Neither did the Xanax I took at home, nor the Ativan, Benadryl, Valium, and more Xanax they gave me in the hospital.

I’m losing huge chunks of time.  I’ll realize I’m somewhere in the house and have no idea how or when I got there, or why, or what I’ve been doing.

I’m falling down the stairs again, only this time I haven’t been so lucky.  I have a very colorful bruise on my arm about three inches in diameter, a deep purple spot on my lip from it hitting something (I didn’t think you could get a mark like that on your lip without splitting it, but you can), and I wound up with the first big egg on the back of my head I have probably had since I was six.  I look like an assault victim.

I woke up in the recliner in the living room the other night, my mom was across from me on the couch.  I have no memory of how I got there, but she was watching my breathing and had almost called an ambulance.

And the hallucinations.  I’ve had hallucinations before, okay.  Not like these.  It’s like I suddenly come to in the middle of a conversation with one of my parents.  Only no one else is in the room.

The EMDR was a bust, so no relief from the post-traumatic stress is predicted.  My depression is at its most profound right now, and I know that my only option is to wait it out.

And (while I try not to) I think, of course, of the years I lost to ECT, the memories that will never come back, the cognitive impairments, the piles of unread books, the complete and total violation and destruction of my identity that took place.

Even writing this. . .  I don’t know.  Is it worse for me to let everyone know the gory details and cause them worry, or is it worse for me to ignore emails and phone calls and comments and text messages and cause them worry?

I have a psych appointment tomorrow, but I have been at this too long to expect anything from it.  I’m not going to give up, because I have been at this so long; I know it will remit eventually, for a little while at least.

It’s just the waiting.

© Ruby Tuesday and I Was Just Thinking. . . 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

Effing PTSD, Effing Sleep, Effing Brain

So I thought I had myself figured as far as sleep issues.  Usually it was pretty impossible, but once I finally passed out I would sleep extra-long so my mind could catch-up on shutdown time.  Occasionally I would have periods of sleeping 16+ hours a day.

My newest sleep problem has gone thus:  Woke up late morning Thursday.  Did not sleep at all Thursday night, Friday, Friday night, most of Saturday.  As in no naps, no drifting off, zip, zero, nada.  No mania or anything, just an almost complete brain shutdown by Saturday morning.

Late afternoon Saturday I got a bit of a reprieve.  I finally slept some, two-and-a-half hours, max.  Was up for a bit, then I got myself to the in between place, you know, drifting in and out but never going fully to sleep (thus in no way allowing my brain to recover).  Two hours tops there, not that it matters because it didn’t help at all.

I’m blaming the PTSD for this.  Lately, dramatic changes in behavior, reaction-sensitivity, and all things in any way tied to my mind (and often body) can be traced back to this, even if I can’t give an exact linear progression.  Also, I’ve been grinding my jaw horribly (bruxism), both while awake and asleep, which I have done while awake before, but never in my sleep.  That started with the latest post-traumatic stress episode.

My mind is completely blown (and not in a good way).  I have no idea what to do.  The only sleep meds left for me to try are barbiturates.  One doctor brought it up entirely on her own as a possible, my two regular docs (PCP and psych) had previously said no way, and I get why.  I may just try to get in touch with the one who suggested it.  I know the risks and certainly don’t want to develop TD (tardive dyskinesia, I’ll explain it some other time), but I am getting so desperate here.  I cannot understand why two doctors who know me and know bipolar well don’t view this with serious concern.  Even if I don’t go manic, sooner or later I will start hallucinating hard-core and progress to full-blown psychosis from lack of sleep.  In the meantime, my mind is pretty useless in general, and completely non-functional about the important stuff.

And this is really important stuff.

Also, I want to hunt down all of these assholes who publish anti-medication, anti-sleep med “articles” (none of whom I have found to be professionals – probably at anything) and who insist that you can manage everything “naturally” and that you just have to “reset your body’s natural rhythms” and make them spend a month with a completely unmedicated me. Let them see how insane and desperate I get, and how hard I struggle. Really I want to kick the shit out of them, but, well I was going to say seeing me in my deepest desperation would be more effective, but you can’t change the minds of ignorant reactionaries who are so used to listening only to themselves that they can’t hear or see anything else, no matter how true.

Moral of the story:  
“To be, or not to be: that is the question:
Whether ’tis nobler in the mind to suffer
The slings and arrows of outrageous fortune,
Or to take arms against a sea of troubles,
And by opposing end them? To die: to sleep;
No more; and by a sleep to say we end
The heart-ache and the thousand natural shocks
That flesh is heir to, ’tis a consummation
Devoutly to be wish’d. To die, to sleep;
To sleep: perchance to dream: ay, there’s the rub;”

~  William Shakespeare, Hamlet

© Ruby Tuesday and I Was Just Thinking. . . 2011. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

Fair Warning (The Chameleon Post)

The “Fair Warning” in the title refers to the fact that I’m back, and after two days I have a lot of ground to cover.  Translation:  This may be my longest post to date (I am inserting this after looking at the word count, just so you know).  It will also be backdated to yesterday, because that’s when I began writing it.  Here I go.

Since I seem to have lost my sleepies (perhaps temporarily, but I’m crossing my fingers for longer), I have a million different ideas and I want to get them out – but they’re in all kinds of bits and pieces and pieces and bits, and for once I don’t care!!!  I’m just excited that my mind is back.  So I’ll probably be jumping from thought to thought with no connection that makes sense to anyone except me.

I’m going to guess my bipolar friends will have the thought of hypomania in their minds, either in the forefront, or as an unconscious, nagging feeling.  I won’t dispute it outright, but this has only been going on for about five or six hours, and I usually am pretty self-aware.  But there are definite instances when I still,  after years and years of this, need a little nudge to notice when my moods are out-of-control (or verging on it), so if you get this and you aren’t subscribed – or you are subscribed and know bipolar (or even just me, you know what I mean) – would you be kind enough to keep an eye on the next few posts, and “nudge” me (comments, email, whatever your preferred method) if you think I need it?  This is an honest request, and I know it’s asking a lot. . .  But I don’t flip shit anymore when someone comments on my moods – honestly, that’s one thing I have learned.  Aside from which, I’m asking for what I realize could be quite a favor.  Never in my life have I asked a favor of anyone and then had the gall to be upset with them because they were so kind as to complete the favor, even if it didn’t turn the way I would have preferred.  I may have some memory blanks, but I still don’t believe I have ever behaved in such a manner.

I know so many of you have incredibly busy lives, and you haven’t necessarily the time for much.  I apologize to all of you for even asking.  But I am trying really, really hard here to head off something extremely not good.  Any help at all. . .  And you don’t have to give me some detailed response, you can leave a comment/send an email/send a text/whatever that simply says “nudge.”  I’ll get it.*

So far I’m wrong on the “jumping from thought to thought” bit (surprise).  I think that can be easily explained.  First, when I write, I often go in a completely different direction than I consciously meant to, which is one of the reasons I find it so beautiful and therapeutic.  Second, I feel like I kind of “got my brain back,” I guess would be the best way to put it (maybe another post – one day I’ll look for all of my maybe/another post references and make myself actually write about them, that should give me material for about a month).  Aside from my girls, my brain is probably the thing I love most in this world.  It is decidedly that which I cherish, adore, and appreciate above all other things that make me the specific and unique Homo sapiens sapiens which I am.  And ever since I emerged fully from the ECT haze (not to be confused with the long-term effects the experience bestowed upon me, those are still thriving), once again able to fully utilize my fervently adored synthesis of gray and white matter, I have not had more than a week or two where it hasn’t given me some reason to worry.  That’s damn near a year straight, and I’m not counting back to the beginning of the ECT, when I should have been extremely worried (that would tack on another eight months, for a lovely round 20 months, or well over a year-and-a half).

Had I known then. . .  Actually consulting my notes, I was extremely worried at first, but not for the reasons that ultimately still plague me.  After a few treatments, I basically progressed into a rapid-cycling, delusional, completely unaware, and even at times clinically psychotic haze.  The psychosis was a very strange, oddly curious experience, honestly.  I was hallucinating, full-blown hallucinations.

The background being that I have had very mild tactile (affecting the sense of touch) and olfactory (related to the sense of smell) hallucinations for years, but literally so mild that the first few times I startled and looked around (tactile), or asked anyone near me if they smelled what I did, usually food or smoke (olfactory).  After that, the disconnects didn’t bother me, which probably seems very strange. . .  And still, to this day, if I smell something and there is someone in the vicinity, I’ll ask them if they smell it, too.  Honestly, I do it completely out of curiosity and an attempt to be aware and monitor the things that go wonky with me (much in the same vein as the plea above).

But the ECT hallucinations. . .  I was seeing things (visual), hearing very distinct noises as well as voices – not in-my-head telling me things voices, but someone calling to me from another room (auditory).  And of course the tactile and olfactory increased.  What makes this very odd and interesting to me, is that while in one part of my brain these were absolutely real occurrences. . .  It was almost as though my mind was split.  As real as they were, and as gone as I was (and believe me, I was gone), I knew as I experienced them, with a very faint but absolute certainty, that they weren’t actually real, external stimuli that existed.  They were strictly a product of my wildly out-of-whack mind.  I knew that no one else could see/hear/feel/smell what I did.

It’s. . .  I don’t know, I guess unfortunate is the word I will choose, in retrospect.  I was still semi-cognizant of reality, but not quite enough so to make the connection of, Hey, if this kind of shit it going on, maybe it’s a signal that it’s fucking my brain up instead helping it.  The hallucinations were fairly early on, but as I’ve written about in previous posts, by the time I even consented to the shocks, I was so psychologically and emotionally worn down, desperate, and in my doctors’ thrall. . .  Add to that repeated shocks to my brain. . .

I can honestly say that is the only time in my life that I ever “let” anyone force me to do anything.  I researched the treatment very thoroughly, considered it very carefully, made an informed decision, and said to my doctors (vociferously, and without doubt or hesitation), “No, never, absolutely not, under no circumstances.”  I expressed this determination explicitly to five doctors.  Repeatedly, for three solid years.  I have a written report from one of them who had suggested electroconvulsive therapy as an option for me, more than two years prior to my “consenting” to it.  I know this isn’t important to anyone but me, but it is so important to me.  Please be kind and indulge me.

The psychiatrist in question is regarded as the best of the best, the doctor for bipolar in the whole of my state.  I won’t detail his credentials, due to my rule of not disclosing identifying details about anyone in this forum, but they are extremely impressive.  He doesn’t even have a regular practice, he is one time consultation, and by referral only.  Translation:  He is the doctor to whom the utterly confounding, seemingly hopeless, inarguably treatment-resistant patients are sent.   A few months ago I was granted a second consult with him.  I say “granted” not in a snide manner, but because to my understanding, anything more than one visit is nearly unheard of, and it took some string-pulling, as well as genuine kindness and sympathy for me on his part.

His relevant assessments on my “Mental Status Exam,”  (direct quotes).

  • “-cooperative, insightful, thoughtful”
  • THOUGHT PROCESS:  ”Logical Directed”
  • COGNITION:  ”Normal Cognition”
  • INTELLIGENCE:  ”Above Average”
  • JUDGMENT:  ”Intact”
  • INSIGHT:  ”Good”

Direct quote regarding ECT:  ”-Consider ECT.  Ms. ~ and I discussed this.  She is currently not in favor of this strategy, though it has proven remarkably effective for many patients.  She is aware of the primary side effects, cost and commitment to 6-8 weeks of intensive treatment.”

Psych speak for, ‘She’s intelligent, she lacks neither judgment nor insight, her thought process is ideal, she understands concepts without any distortion, she takes her time and considers things carefully,’ (Mental Status Exam).  After doing some research on the Mental Status Exam and the terms psychiatrists use to complete, or “score it,” if you will, I can put it much more concisely:  I passed with flying colors.  

Next, ‘As far as ECT as a treatment, she has researched the shit out of it and refuses outright to even put this on the table as an option,’ (quote about ECT).

Couple the two, and what you get is, ‘She is cognitively flawless, and has made an informed decision about which her position is absolutely unyielding.’ 

How did I deteriorate from a lifetime of being that woman to one who was helpless, easily manipulated, and so drugged that I ceased to think at all – I just listened to what my doctor declared was best and regurgitated it as my own idea.  To guild the lily, I’ll point out the period that ends the previous sentence is deliberate, no error, because that is a question for which an answer does not exist.  Thinking back, I feel as though I was living my life in Brave New World.  Close to three decades of an exceptionally strong will and independent mind occluded in two-and-a-half years.

As I said, it’s the one time in my life when I was so broken and desperate that I allowed someone else to make my decisions for me, if you honestly believe that in such a state I was capable of doing so.  The word “allow” implies that one has thought about something and given their consent.  Two of the Merriam-Webster definitions, “permit; to give consideration to circumstances or contingencies.”

Of everything that I have lived through, it is the one and only thing that I would ever go back and undo, if I could.

Moral of the story:  Don’t ever let someone decide things for you.  If five professionals are telling you one thing, all the same thing, but your instincts are telling you something else, listen to your instincts, damn it.  If you can manage to hear your mind over the sound of their insistence, there’s a reason for that:  You know what’s best for you, because despite the combined 160 million years of training and experience of these people, you are the only person in the entire world who has lived your entire life in your body.

Sorry for the complete derailment and uber-long post.  That’s what happens when I can’t write for days.  It all rushes out of me in one enormous burst.

*Oh, and I’m already feeling way more level.  So if you would be so kind as to keep me on your radar (because I’m not new at this, level can be quite fleeting), that would be nice.  But I don’t think you should be quite so concerned for me as I was when I started writing about this.

© Ruby Tuesday and I Was Just Thinking. . . 2011. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

Once, I Wanted To Fly

Or, The Idea That Had Its Genesis On Andrea‘s Wall, But Became Much Too Big For There, Here, And Everywhere

(Warning:  This post is about three times what I consider an approximately “average” length – so either settle yourself in for a long and winding read, or close this page in your browser and do not look back – unless, of course, you are curious about the daily life of a pillar of salt.) 

Just did some research on the necessaries for obtaining a private pilot’s license.  The word discouraging doesn’t even begin to encompass what I discovered.  I suspected that it wouldn’t be good, but it was so much worse than even I anticipated.  Here we go.

So as far as restrictions go, for a private pilot’s license (emphasis in place so that all of you know that the pilot flying your commercial aircraft is subject to a much more rigorous examination and review – at least I would imagine and hope so, I didn’t actually look up the specifics of a commercial pilot’s certification), you have to be able to pass an exam given by a Federal Air Surgeon, who then issues you a Third-Class Airman Medical Certificate.

Do you think that you know where this post is going?  Because you may have a vague idea, but I (and I suspect you, my readers, who don’t spend a great deal of your time thinking specifically about moi  and all the associated. . . special issues that come part and parcel with being moi), was actually really knocked down by the complete and total locked and inescapable labyrinthine construction of the system.

Once more, with feeling. . .

So to begin with the bright work, I could likely get a Discretionary Issuance for my Neurologic issues (yes, I  know that the proper term is neurological, but the government says Neurologic, and at this moment, and in this regard, they are the flight gods).  A Discretionary Issuance is, to the best of my understanding, a sort of waiver that the Federal Air Surgeon grants one when, “. . . [a] person. . . does not meet the provisions. . .” delineated for a Third-Class Airman Medical Certificate, but is not judged to be a risk.  I have not had any psychogenic non-epileptic seizures in approximately three months.  *knock wood*  Another nine months – I thought it was a year, but actually, as I look further, it seems to be entirely discretionary, the Federal Air Surgeon may say I’m clear after a year from being, “. . . reasonably. . . expected, for the maximum duration of the airman medical certificate applied for or held, to make [me] unable to. . . safely perform the duties or exercise the privileges of the airman certificate applied for or held.”  Or he could be a dick and say I have to be clear from the PNES for two years or more.

Moving right along.  My next strike is, of all things, Substance Dependence.  This term means, “a condition in which a person is dependent on a substance, other than tobacco or ordinary xanthine-containing (e.g., caffeine) beverages. . .”  Well, guess what I ingest into my body every single day?  Pretty high doses of Klonopin (clonazepam) and Valium (diazepam) – there are other medications as well, but I’m thinking these are the ones that would freak out anyone evaluating me as “safe” to fly a plane, if they didn’t know me and my level of functioning (which they would not, based solely on a medical exam).  Yes, these are medications which a doctor prescribes to me, but there is no listed exception for a situation such as that.

In any case, my “dependence” would result in, “A verified positive drug test result.”  Which would also negate the possibility for me to be medically certified.  Unless, of course, I stopped taking these drugs which prevent me from going totally fucking off the rails crazy, so I could show, “. . .established clinical evidence, satisfactory to the Federal Air Surgeon, of recovery, including sustained total abstinence from the substance(s) for not less than the preceding 2 years.”  I would say my sanity is totally worth that, wouldn’t you?  Except for the obvious part, where I would not be able to maintain  my sanity for the necessary two (perhaps two-plus) years.

Which, of course, brings us to the elephant.

Oh, but here we’ve come to the very best part, the one that is listed very prominently on every single goddamned site I checked out, and I didn’t have to look very hard, either, because it is a major, give up all hope now, because you are so totally fucked, don’t even think another thought about flight school,’ prohibition.  You all have to know what’s coming by now.  I (I will admit), actually did not.  I thought that this would not be a complete and total blanket disqualification from getting a private pilot’s license because of two words, one diagnosis (military or commercial, yes but not private).  Bipolar disorder.  Ten points to you who guessed what I did not.  I assumed, of course, that this would be an issue, and a very major one, but my expectations were all regarding symptomatology.  Specifics of disease course and manifestations.  No.  I have “A bipolar disorder.”  That’s all.  And that’s everything.

I could have completely and utterly obliterated/destroyed/hidden/snowed/disqualified – just pick a verb that you are especially fond of - the idea of this illness about five or six years ago.  But I now have the indisputable, written diagnosis made by five individual psychiatrists and two independent psychologists (I know, two ain’t quite so impressive as five, but the italics are necessary for continuity of style), as well as a licensed clinical social worker – I’m pretty sure the LCSW put at least a “possible” diagnosis of bipolar down in writing – this was not her area of expertise and she was not properly qualified to “officially” evaluate, nor to treat me (she sent me down to psychiatrist row, which mostly I very much appreciate her doing, but there are moments in which I could hate her intensely for it).  In addition to these eight trained professionals, pretty much all of whom I would give credit for being knowledgeable in the area of bipolar disorder (regardless of whether I like them), I am currently on SSI (a.k.a disability, properly expanded to Supplemental Security Income), a stipend granted to me by the government, specifically for the debilitating effects of my bipolar disorder.  Which actually adds to the total count one more psychiatrist – the one appointed by the state – and a judge, who presided over my case and granted me the SSI (the count of professionals who have “signed-off on,” or “endorsed,” if you like that designation better, my diagnosis is now up to ten, plus “the government,” but I don’t actually have any idea of their designated numerical significance at this particular moment).

It’s funny, for the past handful of years, my primary care doctor would always write “depression” as my psychiatric complaint, he would never, ever write “bipolar disorder.”  I always figured it had something to do with insurance, and that he was being sweet and kind and protective.  Never did the potential incidental ramifications of that label enter my mind.  At least not then.  The unparalleled naiveté found solely in the incredulous human.

Even now, I’m certain that I could hide my symptoms from any doctor, be it a psychiatrist or a Federal Air Surgeon.  Or if nothing else, I could find someone who has the letters MD after their name, and Psychiatry as their “area of expertise,” who would be willing to “clear me” – in exchange for God only knows what.  If I were lucky, it would just be a large sum of money, under-the-table.  *creepy wink*  But I would never, I could never, do something like that.  More to the point, see the overwhelming support of my bipolar diagnosis listed above.  So let’s put the last few nails into that coffin and hammer it tight.

But wait!  It is potentially not that cut-and-dried.  Hooray.  There is another form of governmental certification.  ”At the discretion of the Federal Air Surgeon, a Statement of Demonstrated Ability (SODA) may be granted, instead of an Authorization, to a person whose disqualifying condition is static or nonprogressive (sic) and who has been found capable of performing airman duties without endangering public safety.”  Translation, if I can be “steady-state,” “stable,” – “healthy,” is what I ultimately think they’re looking for (or “euthymic,” to apply the correct psychiatric term for those with mood disorders who are not episodic) – for a period of at least one year, then I may be granted a Statement of Demonstrated Ability.

If I were given a Discretionary Issuance for my PNES, a possibility which I actually could be pretty optimistic about, that’s one hurdle down.  As far as my Substance Dependence, I would think if I had made it so far along in the process that someone was going to monitor my moods for the span of a year to decide whether I was euthymic (and not a public safety hazard), whoever was doing the evaluation would have to have spent at least a bit more time around me, and hopefully seen that these prescribed medications, as far as I react to them, in no way interfere with the skills and aptitude necessary to fly a private plane.  I am much more pessimistic about that barrier.  People see medications and dosing, they rarely look at the effects on the person.  Playing devil’s advocate to myself, though, let’s say that while properly monitoring me over a year’s time, they waive the dependence issue.  That would also nullify the implications of “A verified positive drug test result.”

So I’m pretty golden at this point.  I’m cruising along, I’ve cleared nearly every roadblock.  All that I  have to do is keep steady-state for one year.  One year is not very long, when you’re looking at the span of the average life.  But when the longest period of stability which you can document for yourself is three months (that’s one-quarter of what’s being looked for, in case you didn’t think of it in those particular terms) – three effing months out of the 14+ years which I can identify as actively exhibiting bipolar, without question or doubt – three months non-symptomatic?  A year may as well be ten, or even an entire lifetime.

The End (except not completely, because I thought, What the hell, why not throw every disqualification that applies to me into this post?  It’s already twice the word count of an average post).

“A psychosis. As used in this section, “psychosis” refers to a mental disorder in which. . . [t]he individual has manifested delusions, hallucinations, grossly bizarre or disorganized behavior, or other commonly accepted symptoms of this condition. . .”  Been through that one before.

“No other personality disorder, neurosis, or other mental condition that the Federal Air Surgeon, based on the case history and appropriate, qualified medical judgment relating to the condition involved, finds—

“(1) Makes the person unable to safely perform the duties or exercise the privileges of the airman certificate applied for or held; or

“(2) May reasonably be expected, for the maximum duration of the airman medical certificate applied for or held, to make the person unable to perform those duties or exercise those privileges.”

Aside from the bipolar obvious – grandiosity, impulsiveness, impaired judgment, lack of insight, etc. – I also carry diagnoses for panic disorder and post-traumatic stress disorder.  When those bastards kick in, and they often do so without any apparent trigger or overt warning, you enter something akin to flight-or-fight mode (no pun intended) and cease to be able to think rationally or even follow simple directions.  Since I’m writing about flight, I’ll specifically draw your focus to the inability to rationally recall the basic mechanics of keeping a plane aloft and level.  You also lose most (if not all) of your ability to listen and focus and follow directions from (in this case) your co-pilot or the flight control tower.  I would bet on this paragraph alone, I would be classified as “. . . unable to safely perform the duties. . .”  Et cetera.

And because I am so obviously in a mood to guild the lily:  Though I do not carry a formal diagnosis of Impulse Control Disorder, I would bet anyone dollars to donuts that I am stuck with that one, too.  Maybe I don’t fit in the more extreme, often dangerous classifications, such as Kleptomania, Intermittent Explosive Disorder, or Pyromania (and for that I am grateful).  But my tattoos, my spur-of-the-moment cross-country road trips, and my credit card bills – along with a few other things I won’t detail – are vivid reminders that I consistently do things with an inexplicable internal driving force, and absolutely no thought to consequences.  I honestly believe I have never been diagnosed simply because I have never asked or been asked the appropriate questions about my habits and behaviors.  Or maybe I have and I’ve lied.

Just an FYI:  ”An Impulse Control Disorder can be loosely defined as the failure to resist an impulsive act or behaviour that may be harmful to self or others. For purposes of this definition, an impulsive behaviour or act is considered to be one that is not premeditated or not considered in advance and one over which the individual has little or no control.” (source, Forensic Psychiatry .ca)

Due to the fact that bipolar disorder and impulse control disorder occur so frequently together (co-morbidity), it becomes difficult to tease out the strands of which precipitated what.

That’s a very good behavioral profile for a pilot, isn’t it?

Oh, but merely look and you will see a faint light on the whole wanting to be a pilot thing, because that was what precipitated my deeply personal, cathartic, and largely self-punitive diatribe.  ”In determining whether an Authorization or SODA should be granted to an applicant for a third-class medical certificate, the Federal Air Surgeon considers the freedom of an airman, exercising the privileges of a private pilot certificate, to accept reasonable risks to his or her person and property that are not acceptable in the exercise of commercial or airline transport pilot privileges, and, at the same time, considers the need to protect the safety of persons and property in other aircraft and on the ground.”

Well damn, that clears the slate for me!  I’ll be flying high in two shakes of a lamb’s tail.

Moral of the story:  This is what is referred to as a ‘downward spiral.’  All of you got to read it as it happened.  You were here.  Now to find a way back up. . .

All regulations quoted above regarding medical certification for private pilots, disqualifying disorders and conditions, special considerations, exemptions, etc. – let’s just go with everything quoted but not sourced in the body of the post – can be found in more detail at the Electronic Code of Federal Regulations page.

***I wrote this post, in its entirety, in one sitting, with no interruptions at all over a period of a few hours, four days ago.  I didn’t publish it immediately (as is my usual method when blogging), because after I finished it, I was convinced that in re-reading it I would find it utterly nonsensical and potentially an exhibit of my own psychosis.  These fears grew with each day.  Today I decided to just face it, and was actually very relieved.  It needed basic editing for grammar and consistency of style, as all my posts do, but aside from that I didn’t have to alter anything.  I actually found it quite readable and easy to follow, though hardly one of my best posts (I do have an advantage as far as understanding, of course).***

© Ruby Tuesday and I Was Just Thinking. . . 2011. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.