“I Miss That Girl”

I cannot tell you how often I have uttered or written or thought these words in the last year or more.  I also can’t tell you how very hard this is for me to write, I’m not sure in this moment if I’ll even finish it.

The girl in question, “That Girl”, is me.

Was me.

Was.

God, that hurts so much to even put onto a screen.

Going through years of non-stop, intense battles with mental illness. . .  It’s hard to know how to talk about it, because I haven’t shared my story yet.  Not really.  Those of you who have been reading along for a long time now, you know a lot of things.  But no one knows the whole picture.

Essentially, and the best way I can think to describe it in short, is that in about eight years I went through what most people with mental illness go through in a lifetime.  From the breaking point, then deciding to seek help, then drugs and drugs and more drugs and so many drugs and with them all side effects (some you could not conceive of), and psychotherapy, and electroconvulsive therapy, profound and permanent memory loss and cognitive deficits, my moods swinging wildly, me getting worse, hallucinations, delusions, dissociation, until finally things broke and I got well, and not in the way most people with a mental illness do. . .

The thing I’m trying to communicate is there was no down time.  Never any lulls.  It was continuous, it was constant, because no matter how bad it got, and when it got even worse than that, I dug in harder and said, ‘There has to be something else.  I will not go quietly.  I will not let IT win.  I am going to fucking keep going until I am happy or I die.’

And there she was.  That was her.  That Girl.  I didn’t realize until this very second that it was her all along, she saved me and pulled me through and never let me quit.  She fought for me, sometimes with me, when I could not fight for myself.  And I guess she’s still doing it now, keeping me happy and healthy in the face of so much that threatens me.

She’s had to re-prioritize my life, though, and that’s when I miss what we used to be.  That Girl and I were going to save the world together.  We used to be everywhere we saw hurt or injustice, be it something “small” or something enormous.  We went all in for causes: human rights, animal rights, abolishing the death penalty, abolishing nuclear weapons, civil liberties, keeping the arts in public schools, keeping our government accountable, the list goes on and on – and the word “overwhelming” was not a part of our vocabulary.

That Girl and I were at it when I was 13 (and even before).  I remember 13 especially because that was the age I wore to school (and everywhere else) my homemade “Fur: There’s NO Excuse” button every single day, on every single shirt, much to the ire of so many of my classmates.  They didn’t object to the message, really, they merely objected to me having a social conscience.  But That Girl and I, we never batted and eyelid.  Think about that for a second.  The age when peer pressure is arguably hardest to handle, and we drew it to us like a lightening rod and gave back 1000 times better than anything we ever got.

The first and most famous story of That Girl and me, the one I have grown so fond of over the years, occurred when I was only three years old (I’m not sure how old That Girl was, or if she has an age at all).

I was starting preschool, with my very best friend in all of the world (I miss that girl, too, but in a much different way, for much different reasons).  Now to give you the proper context for this, I was an extremely shy, quiet child outside of my home, and even though I had actually stood and discussed with my mother the fact that preschool needed to happen for me (it was a joint decision between my three-year-old self and my 32-year-old mom, no joke), I was still very scared to start.  My mother was always much more sensitive to my fears than any parent in the history of the world ever has been — or maybe it was my ability to communicate them — because when it came to certain things, she never pressed or forced or did anything but support.

In this instance, we made the deal that she would sit down the hallway outside the classroom in case I got too scared.  That’s how freaked out I was at the prospect of starting preschool.

Then came the first day.  My very best friend Sarah, who was a shy girl herself, was extremely upset because her mom’s friend, Mrs. Alexander, was teaching in the other class. Naturally, she wanted to be in the class with the teacher she knew, with whom she felt comfortable.  So That Girl and I marched right up to our teacher, someone we had only briefly met before school started, and told her that Sarah needed to be moved to Mrs. Alexander’s class.  My teacher was very nice, and this was back when simple things could be accomplished simply. I vaguely recall her taking Sarah next door, and from then on, Sarah was Mrs. Alexander’s charge.

It never crossed my mind, not till years later, that shy, scared, three-year-old girls just don’t do things like that, though apparently the teachers were all pretty impressed, and so was my mother.  I also don’t remember feeling in the least shy or scared.  All I remember was that Sarah was unhappy, she couldn’t do anything about it for herself, and I would have done anything to make that girl feel better.

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the little crusader, arms full of kitten

In my eight years of a lifetime of being very actively mentally ill, a lot of trauma occurred, a lot of things changed in me, and a lot of things changed for me.  I’m very fragile in many ways now.  More so than anyone knows.  I try to still be involved, to speak up, to use my voice to help improve things in this world.  And no matter what comes, I will never be silent.  But instead of things bouncing off of me and me giving better than I get (okay, often I still do the latter, but it takes a harsh toll), I wind up shaking inside, and That Girl pulls rank and forces me to pull back.  Because she knows I have been given one sacred obligation in this life, and as much as I still want to save everyone, That Girl knows she has to save me for the one soul I am responsible for with all of my being.

And she’s right.  But right doesn’t stop tears.  Right doesn’t alleviate hurting.  Right has no power in the slightest to stop me from missing what That Girl and I used to be, nor does it close my mind against wishing we could be it now still.

I guess that what it comes down to is I still want to save the world.  All the other ghosts of regret that have lingered for things I will never be, never do, they all come back to that, too.

My mind knows I need to listen to That Girl, there literally is no other way.  My heart just isn’t on board with things, and it never will be.

 

“While there is a lower class, I am in it; while there is a criminal element, I am of it; and while there is a soul in prison, I am not free.” ~ Eugene Debs


© Ruby Tuesday and I Was Just Thinking. . . 2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

It’s Just A Ride

Some people would argue that point.  They would tell you life’s a journey.  And there is wisdom to that, I concede. . . maybe, sort of, in moments.

This just isn’t one of them.

I have spent the last two or three hours trying to figure out how to put down for you here, my loves, some of what has gone on in the last two months of my life.

Yes, it really has been that long.  I surfaced briefly to write about A Dream about a month ago, and I have done a few posts for Canvas, which I reblogged and shared here.  And there’s even been another project started, which I’ve spoken only in whispers about for a number of reasons.

None of that tells you the ride I have been on.

None of it tells you the hard truths I had faced and was getting ready even to discuss openly here — well, as openly as it gets for me.  Because all at once they were gone, something else took their place, lots of somethings, and I just held on with all that I could.

I’m still holding on.

I’ve been to Canada, back again to Pittsburgh, and to so many airports in between that if I never see another one again. . .  Well, with time and the right incentive, I could face it.

That’s what some of it feels like, you face it, and you realize the foundation of so many things you held as truth, it’s all crumbled into sand.  But it’s the kind of sand you can mold into a new foundation.  It’s malleable, and it may very well actually be magic, you just don’t know.  The fact is that it changes beneath you, sometimes by the moment, and you go right on changing with it, and all at once you find yourself standing in your shower wondering how to wrap words around things in this world that are so much bigger than any words that ever existed.

Perhaps I can give to you instead a few pictures, which will likely make even less sense than this jumble of letters.

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But what you can’t see. . .  The smell of lilacs blooming first thing as you walk out the door. . .  The laughter and joy of discovering someone is a million times more beautiful in person. . .  The sad goodbyes. . .  The unexpected new beginnings. . .  Confusion. . .  Contentment. . .  Stress. . .  Love. . .  Support. . .  Happiness. . .

And me.  All that I knew turned upside-down, still somehow I’m keeping my balance — with a lot of help that doesn’t feel like help at all.  It just feels like. . . more life, the way that it should be.

“He who is certain he knows the ending of things when he is only beginning them is either very wise or very foolish; no matter which is true, he is certainly an unhappy man, for he has put a knife into the heart of wonder.” ~ Tad Williams
 

Note one:  What Brings Us Together; What Keeps Us Apart | Hello Sailor
Note two:  Meizac

© Ruby Tuesday and I Was Just Thinking. . . 2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

A Dream

I had a dream, a wonderful dream.  So wonderful that I didn’t mind having it.  I actually liked having it.

But then I woke up.  I woke up because I was so excited from the dream I thought that it was truth.  And I wanted to live it, with my swollen heart.

But.

It was just a dream after all.  Now it is reality, and I must somehow go back to my broken sleep.

“You never have to change anything you got up in the middle of the night to write.” ~ Saul Bellow

© Ruby Tuesday and I Was Just Thinking. . . 2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

Because I Can

I’m finally letting myself show anger, even rage, call people on the bullshit they hand me, their lies, singular or repeated, all of it.

Because I can.

I purged an old, dead email account of its contents the other day.  What (at the time) I felt was a stupid move was reading a bunch of those emails first.

I was aghast.  I saw myself being emotionally and psychologically abused to a horrifying degree.  Had there been a physical analogue, I would have been the woman in the ED who “fell down the stairs”, “walked into a door”, or was “just the clumsiest woman ever, you won’t believe what I did to myself. . .”  And I would have ended up there daily, until eventually I landed in the ICU, on life support.

Reading those emails was something that needed to happen, though, because it wasn’t just one relationship, and it hadn’t been just with guys I was “involved” with.  I took a long, hard, painful look at the woman I have become, and I’m angry.

I’m angry at myself, but I’m also angry at all of the people who had a big hand in turning me into this woman.  Because I never used to be this way.  You swung at me, I ducked and hit back twice as hard.  You lied to me, I called you on it straight out and gave you the option of being honest henceforth or getting the fuck out of my life.  You treated me badly, or took advantage in any way, I walked and never looked back.

I entered treatment for my bipolar, and slowly, but slowly, I began to wear down, and people took advantage of that.  Even though I knew I was doing everything possible to be well, and that I had never taken my illness out on others — except for a few, a very few, bursts of shouting and tears — I felt like I was a burden just being in people’s lives, and I had to do everything I could to compensate and please others.  This belief was reinforced when friends I’d known for years started backing away; the mother of one of the children I nannied for started distancing herself and telling me how disappointed her child was when I didn’t show up for something because I was curled up in my bed, sobbing, unable to even move (yet I always at least gave her notice that I wouldn’t be there); and finally, my sister, with whom I had always been very close, and my best friend of 20 years both decided to cut off all contact with me, basically telling me that they couldn’t handle “my drama”, and other behavior that was completely beyond my control — even though I was still working my soul to the core trying to prevent them or anyone else from being negatively affected.

Clearly, there was something wrong with me beyond my illness, as a person, and I was lucky to have anyone still in my life at all, so I had to (and did) do anything and everything to keep them.

FUCK THAT.

A sister who walks out on you when you are at your lowest is not a sister.  For a long time I have been compassionate, because she genuinely didn’t get it.  She couldn’t understand why I wasn’t getting well.  But you know what, it doesn’t matter if you understand or not; you love someone, you support them.  You do not call them “a black hole”.

A friend who uses her children to hold you hostage — consciously or not — because you know they are little and they love and need you, and that if you call Mommy on her lies and bullshit and manipulation she will cut off the contact you have with them, I don’t even have a word for that.

Friends who back away because you are as contagious as a leper, and even if they know that statement is true, who don’t want to deal with the fact that you have to fight constantly to keep your head above the swells while they can get up and live their lives every day are not friends at all.

And new people in your life whom you will put up with, excuse even, all manner of garbage from, all while hiding or making light of how bad things have really gotten, because you’re desperate for someone, anyone, to “support” you and show you kindness. . .  Well, that one is on me, but I never would have gotten there without the concerted efforts of the people above.  Yes, they had every right to make a choice to remove themselves from my life, but they were cruel and weak and cowardly to have blamed me, instead of having the guts to admit that they couldn’t deal with being spectators to the struggle I was living and the constant pain I was in.  Because, had they done so, they would have had to admit to themselves that what I lived every day was an enormous struggle, and so unspeakably painful, and they were cutting and running, abandoning me when I needed them more than I ever had.

For years I have searched for the reason I let my former psychiatrist lie and manipulate and force me into electroconvulsive therapy — I can finally use the word FORCE, for the very first time, and you don’t know what a triumph that is — and at last, I have found it.  It was the result of a long line of abandonments and betrayals and manipulations and lies by those I loved and trusted most.  I had been made to feel like less than nothing for so long that I had come to believe it as gospel truth, and who cared that the old me, the real me, had been firmly and unwaveringly against ECT with all of her being for three-and-a-half years?  She wasn’t standing guard any more, and my opinion didn’t count.  How could it, when I didn’t count as a person myself?

That’s something I get to carry with me always.  The permanent brain damage, and the post-traumatic stress I have from being anesthetized, having electrodes hooked up to my head, having a current, a shock pass through my brain to induce a seizure in me — sixteen times over.  I blamed myself for that, too.  Up until about an hour ago.

And still, I put up with bullshit and manipulation and being treated as less than a person by people I love, because it is all I know anymore.  Almost three years to the day of my first shock and seizure.

Now, three years and fifteen days after that first blast of electricity, arguably the lowest point of my life, it ends.  I’m done.  I’m worth more than that, a hell of a lot more.  I am often a hard person to have in your life, and that has always been so, it has very little to do with mental illness.  But I am the best friend you will ever have, if you are willing to accept me, all of me, and give back.

I am smart.

I am compassionate.

I am intelligent.

I am strong.

I am creative.

I am resilient.

I am supportive.

I am loving.

I am beautiful.

I am selfless.

I have a strong moral compass.

I am patient.

I am understanding.

I am honest.

I am accepting.

I am forgiving.

I am idealistic.

I am open-hearted.

I live my beliefs.

And I once again believe that I am worth it, that I am worth more, much more than I have been given in the past six years of my life.  From friends, from lovers, from family.

So I will live my life accordingly from this day on.

Because I can.

“I ain’t a soldier, but I’m here to take a stand. . .”

~ Jon Bon Jovi/Richie Sambora/Billy Falcon


© Ruby Tuesday and I Was Just Thinking. . . 2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

The Terrible Twos

blog cupcake two

This is the proper way to celebrate my blog’s second birthday, which was Friday.

I think my blog and I may have hit the terrible twos, unfortunately.  An expression I think is a misnomer, as it happens, at least in my experience raising children. Both my kids were great during their second years. Three was where things got a bit difficult.

I’m having problems both with me and with WordPress at the moment.  Currently, I’m just waiting these problems out to see what comes next, because that’s all I can do.  But both will have a pronounced effect on the immediate future of this blog.

Oh well.  Whatever happens, at least I got to enjoy a cupcake.

And in these past two years, I’ve made (and even gotten to meet) some wonderful friends through blogging.

“We can spend our lives letting the world tell us who we are.  Sane or insane.  Saints or sex addicts.  Heroes or victims.  Letting history tell us how good or bad we are.  Letting our past decide our future.  Or we can decide for ourselves.  And maybe it’s our job to invent something better.”
~ Chuck Palahniuk, Choke


© Ruby Tuesday and I Was Just Thinking. . . 2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

The Finish Line

Last week my life as I had blissfully known it, for the past year at least, came to an end.

I have been struggling very hard to write something to update everyone, and failing, and failing, and failing.

I wanted to explain more of the situation, but that’s not going to happen, so here are the bare bones.

I can no longer take Carbatrol, which has been my mainstay in mood stabilization.  Not ever again.

It's the Great Big Book of Everything, with everything inside. . ."

It’s the Great Big Book of Everything, with everything inside. . .

I have been through every drug and then some; when I stopped counting in 2010, there had been more than 70.  So I am at a point of patching together what I call the “least worst” solutions for my future.  I have a three-inch thick binder filled with my notes, my doctors’ notes, medication inserts, pharmacy info, articles from different websites, and I’m basically using that, along with a grip of reference books, to decide which drugs were the most effective and the least intolerable.

It’s only been five days, but things have really gone incredibly badly to start.  I don’t want to talk about it.

I’m actually very well-equipped for this, in one way, in an important way.  I have been through this fire, for five-and-a-half years I went through it, and I came out the other side alive.  I know what to expect, and I know that I can get through again.

The thing that is knocking at my infrastructure is that I honestly and truly believed that this was it for me, I had found my cocktail and that was what I would be taking until I drew my last breath.

Also, there is the added element that I’m giving serious thought to looking for a new psychiatrist.  I am undecided here, as I need to sit down and discuss some things with mine first.  Additionally, I went through this process a little more than a year ago, for the first time since I’d sought help in 2006.  I got my first psychiatrist on the second try, and I didn’t know how lucky I was.

When I went through my search last time, I had very few doctors recommended to me, because my then-psychiatrist and my primary just didn’t believe there were many equipped to handle my case.  And, in fact, of those few, all but two said that they didn’t think they could help, because they honestly didn’t know what could be done that hadn’t already been tried.  I appreciated that frankness.

Essentially, what that means is if I do need to find a new doctor (still a big if), there is more than likely only one whom I can go to locally.  And that’s if he is still around, and still taking new patients. I do have information I saved on several national options, but there are enormous practical and financial considerations there. So, we shall see.

My parents are being very supportive, in their way.  After Thursday’s appointment, I told them I am no longer going to discuss with them what medications I am taking, because the last thing I need to be thinking when trying to figure out how to make the best out of a bad thing is, ‘Mom and Dad are going to freak out about this one.’  That really should not be in my mind at all.  Mom took it surprisingly well, she understood completely; Dad, well he will learn to deal with it.  He just loves his baby daughter and worries about me so much.  They both do, after these past years of seeing me hysterical and blanked out and taking me thrice weekly for ECT and rushing me to the ED many times and sitting up nights watching me because they were worried I would stop breathing.  Those are memories a parent can never erase.

So that’s the gist of it.  That’s how my life changed completely over one Thursday in January.  I was one month and four days shy of a perfect year.  But I’m glad I didn’t know that time had an expiration date stamped on it, because if I had, I wouldn’t have loved it as carelessly and blissfully as I did.  I wouldn’t have assumed and made plans and, yes, taken things for granted.  Taking things for granted is not always the monster it’s made out to be, my loves.  And if I have to spend another six-and-a-half years, or the rest of my life, striving for eleven months more like these just past, I will say that it’s worth the trade.  The reward is worth the fight.  More than worth it.

 

The rest of the crew.

More of the crew.

I’ll get through and find something, but it’s probably going to be an endless road of different drugs and dosage adjustments and changing this for that.  I won’t say I’m delighted, but neither will I sit here and wonder and wail that I can’t deal with that prospect.  To me it has never been a question of “how long” or “an end” or “too much”, it just is and I keep going, because this is the life I am living, and that is the only choice I have.  To keep going, to plunge ahead, to try something else.

I will always keep myself afloat, even if it means clinging to the fin of a shark.

© Ruby Tuesday and I Was Just Thinking. . . 2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

Please Don’t Take A Picture

Any psychiatrist who says to a patient who is crying frantically to him or her on the telephone, “Well, there isn’t anything left to do,” should be taken out into a field and shot.

Not shot and killed, mind you.  Not even shot where it might do severe damage, maybe just leave a lifetime of arthritis.

Then, they should be rushed immediately to the hospital, and given all the best medical care — but absolutely no anesthesia or pain medication in any form.  They should have to lay on the operating table, wide awake and fully conscious as the doctor probes around for the bullet and patches them up.

And every time they cry out from the agony of it, the doctor should respond with, “There isn’t anything left to do.”

They should be given nothing to treat the pain for the duration of the healing process, either. Not even an aspirin.  And they should be expected to immediately resume all duties of life, never wincing, never groaning when the pain shoots through them, not limiting themselves because they know they are injured and healing.

They should have to keep going through every day of their lives, and I hope that doctor who removed the bullet did a shitty enough job so the old injury does pain them regularly, so that they can have a constant reminder of what it is to be desperate and be told by the only person who can in fact do something, “There isn’t anything left to do,” when they knew the whole goddamned time that there was a great deal left could be done.

* * * * *

In case I haven’t made it vividly apparent, I had a very upsetting encounter with my psychiatrist this evening.  The story is for telling another day (if at all), but I am okay.  I want everyone reading this to know that.  And I am sorry if I worried anyone with my previous post.  Sometimes I need to write to get things out, and sometimes that writing needs to be public, and sometimes that writing needs to be vague.  It was not my intention anyone should be upset.

Sending you love and kisses,
(a very tired)
Ruby

“After all, tomorrow is another day.”

© Ruby Tuesday and I Was Just Thinking. . . 2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

The Midnight Ravings Of A Madwoman

I’ve had some shit going on in me lately, I haven’t been quite myself.  Or rather I have been, I’ve just been a self I don’t particularly care for, and usually have properly under wraps.

Paranoia.  It’s an ugly word, a much uglier feeling.  What am I so afraid of?  Better to ask what I’m not.  I’m afraid of leaving my room.  I’m afraid of speaking to anyone.  Two years ago it was so bad that I had a little device rigged up to cover the lens for the camera in my laptop.  Never mind if it was turned on or not.  And there has been more.  A lot more.

You can’t explain paranoia, nor can you really do much to treat it.  I carry diagnoses of generalized anxiety disorder (GAD), panic disorder (PD), obsessive-compulsive disorder (OCD), and post-traumatic stress disorder (PTSD).  Of all of these, I say paranoia is the worst.

In any case, GAD, PD, OCD, PTSD, these are all things that came along for the ride when my bipolar got bad — latent traits, recessive genes activated by my wildly dominant bipolar.  Or, in the case of PTSD, a trauma that was a result of a “treatment” for my bipolar depression (electroconvulsive therapy), and a trust violated.

Paranoia has been with me, in milder but truer form, since birth (to keep things straight, I do not believe that bipolar has, but that I have yet to discuss).  I have what a lifelong friend calls “a paranoid personality” (minus the disorder part, it makes an enormous difference).  And it’s true.  I read the big books young, cutting my teeth on gems like Ray Bradbury’s Fahrenheit 451, Sinclair Lewis’ It Can’t Happen Here, Aldous Huxley’s Brave New World, and (of course) George Orwell’s 1984.  I even understood the evils of totalitarian societies when I read Richard Adams’ Watership Down for the first time when I was ten.  Oh yes, a book about bunnies and evil.

These books didn’t make me paranoid. I was drawn to them because they spoke to something I knew, something which was already a part of me.

Lately there have been so many people and things that have me scared. I’ll stick to the latter.  This thing, this internet, this “information superhighway” — it scares the fuck out of me.  Do you know how your information is being collated and collected and used and stored?  I think most of you know the bare bones of facebook.  But do you know that The Library of Congress is saving all of your tweets?  Do you know how tailored Google’s algorithms and tracking of pretty much everything you do online is? Do you know that the privacy laws (in the United States, at least) protecting information like your private, personal email correspondence are so incredibly loose as to be a joke?

(Do you know I am terrified to have ventured down to The Dungeon right now to post this? My wi-fi is out, so I have to connect to the modem in the basement directly and I feel utterly exposed.)

Do I know I sound like I’m raving like a madwoman right now?  Yep.  That’s what paranoia does.  I’m terrified to watch and read and learn more, but I’m much more frightened to look away, because someone has to be paying attention, goddamnit.

I don’t know.  I don’t know what I’m meant to do with this, what I mean with this post.  I have this magic brain — and not in the crazy, “magical thinking way”, in the unusual, really fucking amazing way.  It got me through years of horror and saw me out the other side.  It’s like there are two of me, living simultaneously.  And one of them would be hallucinating, and the other one would be telling that one, ‘This is a hallucination.  Those noises, that smell, those things you see and feel on your skin, they aren’t real.  It’s okay, don’t worry, all you have to do is to just wait it out.’

And I did.  That part of me saved me, it talked me through highs and lows and fears and crazies and got me to where I could be the happy, healthy, more-or-less sane woman I am now (maybe not right now).  Most people don’t have that, believe me, I’ve done my research here.  But my point is, that part of me is now wondering how to talk the other part down.  Or at least keep a lid on things until this episode passes.

© Ruby Tuesday and I Was Just Thinking. . . 2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

It May Not Always Be An Easy Life, But It’s My Life

And I just want to live while I’m alive.

I think it’s time to update everyone.  I’ve had a very eventful couple of weeks.  To the point where I haven’t told anyone not directly involved in said events anything about them, not really.  It’s taken some processing time.  Also, it’s painful for me to be still long enough to write anything.

So, the new year started off with a bang.  I went to see my infectious disease specialist on the second.  There was good news: I am no longer in the acute stage of mono, I am now in the convalescent stage.  Except that really is only good news on paper, because the convalescent stage can last up to six months.  And having had mono before, I know that it’s pretty much guaranteed to with me.

I felt so miserable (physically) that very day that I went to the urgent care directly as I had finished my appointment, and they pumped me full of two liters of fluid.  I didn’t have to pee once.  I tell you this, because as anyone in the medical field might recognize, it was indicative of my severe dehydration.

The next day I took my two younger sprites down to see the lights at the Denver City and County Building, as I was meant to do the day before, but couldn’t, being hooked up to an IV and all.  This may have been a mistake, as I was in no shape for it (there was much to see, so we got out and they ran around while I trailed behind and hollered for them not to get too far away), but we had a really nice time and I managed to save my meltdown(s) until I came home.

I haven’t melted down like that in a long time.  That night I was like Vesuvius.  Explosions and tears and anger and yelling and frustration. . .  Well it got very ugly.  I was emotionally and physically drained, and had made the mistake of actually looking long-term and realizing that July was when I was probably going to be back to about 85%.

See, that was (and still is) kind of a huge thing for me to deal with, because I pretty much spent three years in bed due to mental illness.  Except for appointments and very rare visits with friends, I lived my life curled up in my sheets.  I couldn’t wrap my head around being forced back into a state like that, even temporarily, and even when I was doing pretty damned good psychologically.

Well, I had a lovely friend, whom I actually reached out to — which is huge in itself — help me through that night.  And for that (among other things) I’ll always be grateful to her.

So I’m dealing with the mono recovery road, but I’m also dealing with sciatica.  I developed mild sciatica about a decade ago, in my left hip and leg, when The Artist formerly known as Babygirl (I can’t call her Babygirl anymore, I’m afraid, she’s 13 and way too grown up) had been riding on my hip for a couple of years.  It went away — I would get a tinge every now and again, but no big deal.

Well, starting last Fall, it came back, and it came hard.  A couple of the times I went to the urgent care for Dilaudid injections, the sciatica was my primary pain.

(Side note:  My primary care doctor and I — the one I was certain there was no hope of salvaging a relationship with — somehow hit the reset button during one of my urgent care visits.  A doctor at another location in the same network that my doctor works in essentially treated me as a crazy drug-seeker, which pissed my doctor off righteously, and I’m wondering if it maybe made him see the way I felt he was treating me [minus the drug-seeker part, he's never treated me badly from that standpoint].  Whatever it was, he and I are now on the best terms once again.  Just goes to show you, there is always hope when a person is a good person.)

It continued to build, and it continued to build, and after seven urgent care trips in two-and-a-half months, and a conversation on the phone with my doctor this past Thursday, I ended up spending Thursday night in the emergency room.  My doctor wanted me somewhere they could do a more thorough workup, instead of just treating the pain, and I was happy to defer to him.

It took two shots of Dilaudid (I don’t think the first one was more than one milligram, I think the second was about twice that), but finally, finally, and for the first time in months, I think, I was out of pain.  I knew that day that I was in a great deal of pain, and waiting in the ER to even get through triage was pretty ugly, but I don’t think I knew how bad the pain really was until I got out of it.

So I saw my primary in the urgent care on Friday, because his office said they couldn’t get me in until the beginning of February (he said other things when I saw him).  I have an MRI set for Monday morning to check for a slipped disk or spinal compression, I’ll be set up for physical therapy contingent on the results of that, I’m taking an oral steroid — if that helps there will be steroid injections to follow — muscle relaxers, and I’ve got my good friends ibuprofen and oxycodone keeping my pain minimal for now.

It took me some time to process all of this, and I’m probably not done — right now I’m just kind of high.  I keep hearing things from people like, “Wow, you just have one thing after another,” or, “It never stops for you, does it?”  And there is truth in those statements.

But, with the exception of The Night Of Vesuvius, I’m alright. Better than alright.  Even that night was just some dealing and processing I had to do to get to here.  My mental health is well intact, praise God, and everything else will fall into place as long as I have that.  After being without it for so many years, I feel like as long as I’ve got it — and all of the support my amazing friends and family show me — I am leading a charmed life.  It may sound cockeyed, but then so have I been cockeyed for pretty much all of my life.  ;)

You may not be hearing from me much, as I have instructions not to sit for long, and when I do rest, the only way that I’m comfortable for any length of time is if I lay down and stick two big pillows beneath my hips.  You try working on a laptop at that angle.

But I’ve been playing on Twitter; if you don’t already know me there, my handle is @BlushingScarlet.  That I can do from my phone, which is easier to stick on my stomach and type with.  I’m going to still do everything I can to be a good admin for A Canvas Of The Minds, which now has so many wonderful authors that they can easily run they site without me (which is good, I may not be writing much there for the present).*  I’m reading posts from my phone, and clicking the “Like” button is my version of “I was here, thank you for giving me something worthwhile to read”, and sometimes I will attempt a comment — though those can get a little too runaway for a phone and a girl like me.

My personal correspondence is going to be a little slower.  And by that I mean even slower than normal.  Same with comment responses.  But just know it isn’t because I’ve forgotten, okay?  I love you all so very much.

I’ll leave you with the pictures I took in the ER while high as a kite on Dilaudid, Prednisone, Valium, and at least one or two other things.  I honestly just remember there were multiple shots and I swallowed a cupful of pills, and those of you who know me well know that for me to have been that willing to put so much blind faith in any doctor, things were pretty bad.  But I had fun trying to take pictures amid the tangle of wires (blood pressure cuff on my left arm, pulse oximeter on my right pinky, oxygen hooked up to my nose, mp3 player headphones in my ears to help zen me out) in my little ER bed.  Thank God the nurse left the sides up, I probably would have fallen out.

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And also, I give you the immortal words of Jon Bon Jovi, from the song Its My Life: “My heart is like an open highway/Like Frankie said, ‘I did it My Way‘”

“Don’t bend, don’t break, baby, don’t back down. . .”

I won’t if you won’t.

Kisses,
Ruby

*Speaking of Canvas, we can now boast of two Freshly Pressed authors! In case you missed it, DeeDee was Pressed in December for her piece Coming Out Bipolar, Round 1, and just this past week Alice was Pressed for her piece Epic Quests and crap like that. Congratulations to them both; they write good shit, and more importantly, they’re good eggs. Now they just have to get something they’ve written for Canvas Pressed!

© Ruby Tuesday and I Was Just Thinking. . . 2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

Dust Off Your Highest Hopes

Raise your hand if you’ve ever made a New Year’s resolution.  Now raise your hand if you have ever completely failed on one — or most.

Yeah, me too.  Actually, I think I got wise to the whole resolution game before I was nine.  That was how old I was the last time I made a New Year’s resolution.  And no, I don’t remember what it was.

The thing is, failing at a New Year’s resolution isn’t really a very painful experience, like failing at a goal you set for yourself some other time of the year.  Why not?  Because you know that countless other people are failing at theirs as well.  You aren’t alone.  It’s a time of year when we can actually all have a bit of a laugh and understanding for our failures.  It’s almost expected.  We do it together.

Well, I have a better idea for something we can all do together to begin this year.  I say we hope for ourselves.

In 2012, I got the thing in my life that mattered most, the thing I thought I had given up hoping for on any real, fundamental level.  After half my life dealing with raging mental illness, and the last six years (give or take) causing such acute suffering that I didn’t even know who I was anymore, I had given up ever seeing myself again.  I never gave up believing that something would help glue together the pieces into a semblance of myself, but that wonderful, beautiful, bright, happy, intelligent, crazy, head-in-the-clouds-and-hands-in-the-stars me. . . she wasn’t coming back.

Only she did.  She’s here.

Last March, one Sunday I woke up and I was the girl I’d been ten years ago.  And I knew that she would never go again.  I have to keep taking medication, yes, and I’ve had some hiccups, true enough.  But I knew that Sunday I had somehow fought through all of those years to get me back.  I believed it that first day, and I believe it all these months later.

So let’s do something else this New Year’s Eve, and let’s do it together.  Let’s hope.

I may not be the most interactive blogger when I write, but this post is designed differently (and take advantage of that, as it may be the only one!).  I’m going to share with all of you, my loves, the things I am hoping for in the year to come.  Things for me, in my life.  Yes, I hope for a kinder, more peaceful world, and I hope that my girls will continue to find the happiness in growing up and be spared as much as possible from the pain.  Of course I hope for those things.  Everyone hopes for things such as those.

I hope to do more things like this, with this lady (who has not signed a photo release) if possible

I hope to do more things like this, with this lady (who has not signed a photo release) if possible

 
 
In this post, though, the hopes I will share with you will be my hopes, for my life.  Things upon which I have some direct effect, and things upon which I may have none.  And I would love so very much for you to share yours with me in the comments.  As many as you would like.  You may find this a little scary, when you really get down to it.  I certainly do.  Because hope touches the most intimate and secret places in our hearts, and it is often something we don’t share with anyone.

 
 
But here I go:

  • I hope to be good and properly swept off my feet this year.  I’ve been in love, and I have even let my heart and senses get ahead of my brain (but not since I was 16).  I don’t care if it’s love, and I don’t care if it lasts for a year or a week.  I just want to lose all sense of “should I?” and go for it.
  • I hope to be able to get out and live on my own.  My parents are lovely to have taken me this far, but I need my own space in which I can properly enjoy being me again.  I don’t care if it’s a one-room studio, or if it’s drafty, or if I have to walk a million stairs.  As long as it has a proper kitchen, washer and dryer hookups, and a bathtub!
  • I hope I can have regular dates with my Babygirl once again (lunch on Sundays, perhaps).  She is at a place where I feel like she needs me more, and I have always needed her.  The difference is that now I can be there for her in a tangible way.
  • I hope to get back to kickboxing (I had a nice start pre-mono) and rebuild my strength, my endurance, my confidence, and my body, too.  Kickboxing does wonders for me as a mood stabilizer as well, so there really is no downside.
  • I hope to do a lot more traveling, both domestically and (kicking in some major hopes) internationally.  Rome, Venice, get ready for Ruby!
  • I hope all the necessaries can align for me to get that tattoo I’ve been planning for some time.  Artist, money, me. . .  It matters.
  • I hope to learn film development.  And yes, I mean color as well.  Every time someone tells me how incredibly difficult color is, it makes me want it more and more.  Again, there are many things that must align in this equation.
  • I hope I can spend more and more time reading.  I’ve said previously that I was grateful to just be able to read again at all, and so I was, and so I’ll always be.  But that doesn’t have to be the end of it, and I believe that if I work on it, and never say enough, I may be able to get back to reading the way that I used to.  To devouring.
  • I hope to get back to writing more.  Blogging, yes, but more writing for myself.  Journaling, writing fiction, sending letters and emails, even.  I intend to feed my imagination so much that it has no choice but to bleed through my fingers onto the page.
  • I hope to actually do something with my recently discovered love of oil pastels.  It may turn out beautifully, it may turn out like the scribblings of a two-year-old, it will most likely turn out somewhere in the middle, but I want it to turn out.  I want to lose The Fear.
  • I hope, in addition to the general travel wish, to spend a great deal of time at the beach.  Or, more precisely, in the ocean!

There you are.  From my heart to yours.  Now share with me what you have in your heart.  What do you hope for in the year to come?

I hope you all have a wonderful year, full of hope, and I send you my love.

Addendum: Hopes have no expiration dates, and this post is not just a New Year’s Eve thing. Keep sharing the things you want for this year (nothing as ugly as “must dos”, but the beautiful “I hopes” — see below for the things others have contributed, if you’re confused), because if you accomplish nothing else, in doing so you spread a little more joy into the world. Also, if you decide to share your hopes on your own blog, let me know with a link!

Oooh, Meizac wrote a post, Meizac wrote a post! Go forth and read: My hopes for the year to come

© Ruby Tuesday and I Was Just Thinking. . . 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.