The Finish Line

Last week my life as I had blissfully known it, for the past year at least, came to an end.

I have been struggling very hard to write something to update everyone, and failing, and failing, and failing.

I wanted to explain more of the situation, but that’s not going to happen, so here are the bare bones.

I can no longer take Carbatrol, which has been my mainstay in mood stabilization.  Not ever again.

It's the Great Big Book of Everything, with everything inside. . ."

It’s the Great Big Book of Everything, with everything inside. . .

I have been through every drug and then some; when I stopped counting in 2010, there had been more than 70.  So I am at a point of patching together what I call the “least worst” solutions for my future.  I have a three-inch thick binder filled with my notes, my doctors’ notes, medication inserts, pharmacy info, articles from different websites, and I’m basically using that, along with a grip of reference books, to decide which drugs were the most effective and the least intolerable.

It’s only been five days, but things have really gone incredibly badly to start.  I don’t want to talk about it.

I’m actually very well-equipped for this, in one way, in an important way.  I have been through this fire, for five-and-a-half years I went through it, and I came out the other side alive.  I know what to expect, and I know that I can get through again.

The thing that is knocking at my infrastructure is that I honestly and truly believed that this was it for me, I had found my cocktail and that was what I would be taking until I drew my last breath.

Also, there is the added element that I’m giving serious thought to looking for a new psychiatrist.  I am undecided here, as I need to sit down and discuss some things with mine first.  Additionally, I went through this process a little more than a year ago, for the first time since I’d sought help in 2006.  I got my first psychiatrist on the second try, and I didn’t know how lucky I was.

When I went through my search last time, I had very few doctors recommended to me, because my then-psychiatrist and my primary just didn’t believe there were many equipped to handle my case.  And, in fact, of those few, all but two said that they didn’t think they could help, because they honestly didn’t know what could be done that hadn’t already been tried.  I appreciated that frankness.

Essentially, what that means is if I do need to find a new doctor (still a big if), there is more than likely only one whom I can go to locally.  And that’s if he is still around, and still taking new patients. I do have information I saved on several national options, but there are enormous practical and financial considerations there. So, we shall see.

My parents are being very supportive, in their way.  After Thursday’s appointment, I told them I am no longer going to discuss with them what medications I am taking, because the last thing I need to be thinking when trying to figure out how to make the best out of a bad thing is, ‘Mom and Dad are going to freak out about this one.’  That really should not be in my mind at all.  Mom took it surprisingly well, she understood completely; Dad, well he will learn to deal with it.  He just loves his baby daughter and worries about me so much.  They both do, after these past years of seeing me hysterical and blanked out and taking me thrice weekly for ECT and rushing me to the ED many times and sitting up nights watching me because they were worried I would stop breathing.  Those are memories a parent can never erase.

So that’s the gist of it.  That’s how my life changed completely over one Thursday in January.  I was one month and four days shy of a perfect year.  But I’m glad I didn’t know that time had an expiration date stamped on it, because if I had, I wouldn’t have loved it as carelessly and blissfully as I did.  I wouldn’t have assumed and made plans and, yes, taken things for granted.  Taking things for granted is not always the monster it’s made out to be, my loves.  And if I have to spend another six-and-a-half years, or the rest of my life, striving for eleven months more like these just past, I will say that it’s worth the trade.  The reward is worth the fight.  More than worth it.

 

The rest of the crew.

More of the crew.

I’ll get through and find something, but it’s probably going to be an endless road of different drugs and dosage adjustments and changing this for that.  I won’t say I’m delighted, but neither will I sit here and wonder and wail that I can’t deal with that prospect.  To me it has never been a question of “how long” or “an end” or “too much”, it just is and I keep going, because this is the life I am living, and that is the only choice I have.  To keep going, to plunge ahead, to try something else.

I will always keep myself afloat, even if it means clinging to the fin of a shark.

© Ruby Tuesday and I Was Just Thinking. . . 2013. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

Implications Speak More Loudly Than Words

So.  That jerk behind the blog A Clown On Fire just made me do two things I need to be doing less of: think and cry.

Let me explain.  He actually did something very sweet (don’t tell him I told you, it’ll ruin his image of himself).  I was involved in a conversation on Twitter with his lovely wife, Sara (of Laments and Lullabies), and another dear friend of ours, DeeDee (of Disorderly Chickadee) about. . . well there were many things, but it led up to smoothies and alcohol.  I informed them that I was “on the wagon”, as it is put, and Eric immediately chimed in with praise, tweeting, “Good for you, Ruby.”

In about 30 seconds, things got a little muddy in my mind.  Because my reason for choosing to never again drink is a good one.  It’s a very important one.  It’s a mentally healthy one.  And it isn’t an easy choice.  Actually, it’s really fucking hard.  I’m not an alcoholic, I can honestly say that there has only been one time in all of my 32 years that I have used alcohol in any way that crossed the line between “acceptable” and “not”.  Ideas, by the way, that are completely individual and as unique as each person who has ever imbibed.  Point being, while I didn’t drink often or much, I really loved occasionally to have a  few bloody marys, a couple of glasses of champagne, a really yummy cosmo, or my favorite strawberry margaritas.

Except.

Except I began to notice something.  I have been stable and healthy and happy for eight-and-a-half months now.  And in that time, I’ve discovered a few major things that were lost in the confusion of bipolar and its sidekicks.  One of the things I discovered is that when I drink, the three or four days following I am very, very. . .  There needs to be a word for this, but I can’t find one (and not for lack of a thesaurus).  If I hadn’t been where I’ve been, I might say depressed.  But it isn’t like that.  Certainly it’s a much stronger, different state than sad.  Heartsick comes close, but soulsick captures it better.  That’s about how I feel.  And it’s strong enough, and it affects me enough that I did the math and decided it was a really bad idea for me to drink.  At all.  Ever again.

I’ve had quite a few conversations with friends and family members about this.  And reactions have varied from ‘Oh, I feel that way, too’ — no, you don’t, if you did you would either have stopped drinking or be drunk all the time, trust me on this — to ‘Well, that’s smart.  Good for you.’  Only the ‘good for yous’ I have gotten are about on par with what I would get if I told someone I was exercising more.  Kind of a ‘That’s nice, it’s healthy, but it isn’t really much of a thing.’

Why is that?

Everyone acts as if me quitting drinking isn’t really very important.  As I said, I’ve never had any problems with alcohol, I’ve never even drunk-dialed an ex, therefore my consumption/lack of consumption really only affected one person.  So I guess, in the end, I shouldn’t expect any kind of ticker tape parade.  Alcohol is such a staple in most people’s lives that it really has to be fucking you up before they are willing to admit that making a decision to rid your own life of it forever is something difficult for you and worth recognition.*

Which is why those three little words, “Good for you”, catching me completely off my guard (and clearly in a vulnerable spot), reduced me to tears.

So thank you for your words of support, Eric.  They mean more to me than I ever want anyone to know.

*To be inescapably clear, I am not dismissing, criticizing, or trying to minimize how amazing it is for an alcoholic, or someone abusing alcohol in any way, to make the decision to become sober.  I actually don’t have the words to express how incredible and courageous that is.

© Ruby Tuesday and I Was Just Thinking. . . 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

Through Pain Comes Growth

I’ve heard that, you know.  I remember it most specifically from an episode of The Nanny, of all sources.  But I have no idea what has come from my latest pain save meals of hydrocodone and promethazine, and a renewed terror of the Migraine Monster.

I’ve had severe headaches since I was quite young, so young, in fact, that my mother remembers them more vividly than I do.  What I remember is a diagnosis of common migraine (a migraine lacking aura – all the weird, usually visual changes that precede the pain by roughly 20-30 minutes in a complex migraine) more than half a lifetime ago.  There was one emergency room visit with CT scan (normal), injections and prescriptions of every drug developed for migraine ever (please don’t make me reiterate them all), prophylactic meds in failed attempts to prevent them, or at least lessen their frequency, about a half-dozen specialists who all confirmed that my brain wasn’t doing anything underlying to cause this pain, and from all of that we have arrived where we were more than a decade-and-a-half ago.

The only thing for the pain is Vicodin (unless someone wants to hospitalize me and give me a nice shot of Demerol in the butt, makes me throw up every time, but oh! how it obliterates that pain!), and thank God I have a doctor who trusts me and is willing to write me for it. And now I’m drinking promethazine for the nausea, because last November, for the first time in all of my life, the nausea progressed to actual vomiting. It was traumatic, having never happened before, so I now work to avoid it.

All of that being said, this time was entirely different.  Trying to even remember. . .

About two-and-a-half weeks ago, I started getting horribly irritable, reactive, anxious, emotional.  These were no mood symptoms, at the time I had no thought of what could be causing them.

Then, last Tuesday into Wednesday, the dam broke and there was pain.  Oh, was there ever pain.

But there were pain-free periods interspersed, and they were sometimes worse.  Because I experienced in them such confusion, the first night was nearly an emergency room visit because my blood pressure jumped and I felt as though I was dying.  The problem is that after my ER experience for a dystonic reaction, I realized that sometimes that little voice is there for a reason, and that it’s better to err on the side of a little hypochondriasis than to, well, die.

I basically lived through some psychosis that was entirely unrelated to mania or depression.  My mood has been completely stable throughout this.  Really stable.  Almost frighteningly stable, if that can be said.

So the pain alternately remits and returns through this past Monday, with less intensity each time.  But it wasn’t until late afternoon on Monday, when I finally passed out in the middle of a text conversation, and slept for nearly 24 hours that I felt like I was on the mend.  I always need to follow my migraines with a good, long sleep (I’m told this is not uncommon).

I still expect another few days of being “out of it”, convalescing, recovering.  My writing alone should indicate that my brain is not yet back to where I want it to be.  This is decidedly not my best effort, but I don’t know how really to share a migraine with you.  When it’s intense, there is no looking at any light, so I cannot type something up.  During the brief periods of remission, I have been able to type short emails, comment responses, etc., but no long trains of thought.

I guess I want to post this because my brain is still so addled.  It will give you some sense. It is not brilliant work, but it meets Ruby’s standards for valuable because it is honest work.

Incidentally, I have never in all of my days experienced a three-week-long migraine.  I have an inkling of what may have caused it, but if I’m right, well. . .  It’s going to be ugly for a while.

© Ruby Tuesday and I Was Just Thinking. . . 2012. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.

Once, I Wanted To Fly

Or, The Idea That Had Its Genesis On Andrea‘s Wall, But Became Much Too Big For There, Here, And Everywhere

(Warning:  This post is about three times what I consider an approximately “average” length – so either settle yourself in for a long and winding read, or close this page in your browser and do not look back – unless, of course, you are curious about the daily life of a pillar of salt.) 

Just did some research on the necessaries for obtaining a private pilot’s license.  The word discouraging doesn’t even begin to encompass what I discovered.  I suspected that it wouldn’t be good, but it was so much worse than even I anticipated.  Here we go.

So as far as restrictions go, for a private pilot’s license (emphasis in place so that all of you know that the pilot flying your commercial aircraft is subject to a much more rigorous examination and review – at least I would imagine and hope so, I didn’t actually look up the specifics of a commercial pilot’s certification), you have to be able to pass an exam given by a Federal Air Surgeon, who then issues you a Third-Class Airman Medical Certificate.

Do you think that you know where this post is going?  Because you may have a vague idea, but I (and I suspect you, my readers, who don’t spend a great deal of your time thinking specifically about moi  and all the associated. . . special issues that come part and parcel with being moi), was actually really knocked down by the complete and total locked and inescapable labyrinthine construction of the system.

Once more, with feeling. . .

So to begin with the bright work, I could likely get a Discretionary Issuance for my Neurologic issues (yes, I  know that the proper term is neurological, but the government says Neurologic, and at this moment, and in this regard, they are the flight gods).  A Discretionary Issuance is, to the best of my understanding, a sort of waiver that the Federal Air Surgeon grants one when, “. . . [a] person. . . does not meet the provisions. . .” delineated for a Third-Class Airman Medical Certificate, but is not judged to be a risk.  I have not had any psychogenic non-epileptic seizures in approximately three months.  *knock wood*  Another nine months – I thought it was a year, but actually, as I look further, it seems to be entirely discretionary, the Federal Air Surgeon may say I’m clear after a year from being, “. . . reasonably. . . expected, for the maximum duration of the airman medical certificate applied for or held, to make [me] unable to. . . safely perform the duties or exercise the privileges of the airman certificate applied for or held.”  Or he could be a dick and say I have to be clear from the PNES for two years or more.

Moving right along.  My next strike is, of all things, Substance Dependence.  This term means, “a condition in which a person is dependent on a substance, other than tobacco or ordinary xanthine-containing (e.g., caffeine) beverages. . .”  Well, guess what I ingest into my body every single day?  Pretty high doses of Klonopin (clonazepam) and Valium (diazepam) – there are other medications as well, but I’m thinking these are the ones that would freak out anyone evaluating me as “safe” to fly a plane, if they didn’t know me and my level of functioning (which they would not, based solely on a medical exam).  Yes, these are medications which a doctor prescribes to me, but there is no listed exception for a situation such as that.

In any case, my “dependence” would result in, “A verified positive drug test result.”  Which would also negate the possibility for me to be medically certified.  Unless, of course, I stopped taking these drugs which prevent me from going totally fucking off the rails crazy, so I could show, “. . .established clinical evidence, satisfactory to the Federal Air Surgeon, of recovery, including sustained total abstinence from the substance(s) for not less than the preceding 2 years.”  I would say my sanity is totally worth that, wouldn’t you?  Except for the obvious part, where I would not be able to maintain  my sanity for the necessary two (perhaps two-plus) years.

Which, of course, brings us to the elephant.

Oh, but here we’ve come to the very best part, the one that is listed very prominently on every single goddamned site I checked out, and I didn’t have to look very hard, either, because it is a major, give up all hope now, because you are so totally fucked, don’t even think another thought about flight school,’ prohibition.  You all have to know what’s coming by now.  I (I will admit), actually did not.  I thought that this would not be a complete and total blanket disqualification from getting a private pilot’s license because of two words, one diagnosis (military or commercial, yes but not private).  Bipolar disorder.  Ten points to you who guessed what I did not.  I assumed, of course, that this would be an issue, and a very major one, but my expectations were all regarding symptomatology.  Specifics of disease course and manifestations.  No.  I have “A bipolar disorder.”  That’s all.  And that’s everything.

I could have completely and utterly obliterated/destroyed/hidden/snowed/disqualified – just pick a verb that you are especially fond of - the idea of this illness about five or six years ago.  But I now have the indisputable, written diagnosis made by five individual psychiatrists and two independent psychologists (I know, two ain’t quite so impressive as five, but the italics are necessary for continuity of style), as well as a licensed clinical social worker – I’m pretty sure the LCSW put at least a “possible” diagnosis of bipolar down in writing – this was not her area of expertise and she was not properly qualified to “officially” evaluate, nor to treat me (she sent me down to psychiatrist row, which mostly I very much appreciate her doing, but there are moments in which I could hate her intensely for it).  In addition to these eight trained professionals, pretty much all of whom I would give credit for being knowledgeable in the area of bipolar disorder (regardless of whether I like them), I am currently on SSI (a.k.a disability, properly expanded to Supplemental Security Income), a stipend granted to me by the government, specifically for the debilitating effects of my bipolar disorder.  Which actually adds to the total count one more psychiatrist – the one appointed by the state – and a judge, who presided over my case and granted me the SSI (the count of professionals who have “signed-off on,” or “endorsed,” if you like that designation better, my diagnosis is now up to ten, plus “the government,” but I don’t actually have any idea of their designated numerical significance at this particular moment).

It’s funny, for the past handful of years, my primary care doctor would always write “depression” as my psychiatric complaint, he would never, ever write “bipolar disorder.”  I always figured it had something to do with insurance, and that he was being sweet and kind and protective.  Never did the potential incidental ramifications of that label enter my mind.  At least not then.  The unparalleled naiveté found solely in the incredulous human.

Even now, I’m certain that I could hide my symptoms from any doctor, be it a psychiatrist or a Federal Air Surgeon.  Or if nothing else, I could find someone who has the letters MD after their name, and Psychiatry as their “area of expertise,” who would be willing to “clear me” – in exchange for God only knows what.  If I were lucky, it would just be a large sum of money, under-the-table.  *creepy wink*  But I would never, I could never, do something like that.  More to the point, see the overwhelming support of my bipolar diagnosis listed above.  So let’s put the last few nails into that coffin and hammer it tight.

But wait!  It is potentially not that cut-and-dried.  Hooray.  There is another form of governmental certification.  ”At the discretion of the Federal Air Surgeon, a Statement of Demonstrated Ability (SODA) may be granted, instead of an Authorization, to a person whose disqualifying condition is static or nonprogressive (sic) and who has been found capable of performing airman duties without endangering public safety.”  Translation, if I can be “steady-state,” “stable,” – “healthy,” is what I ultimately think they’re looking for (or “euthymic,” to apply the correct psychiatric term for those with mood disorders who are not episodic) – for a period of at least one year, then I may be granted a Statement of Demonstrated Ability.

If I were given a Discretionary Issuance for my PNES, a possibility which I actually could be pretty optimistic about, that’s one hurdle down.  As far as my Substance Dependence, I would think if I had made it so far along in the process that someone was going to monitor my moods for the span of a year to decide whether I was euthymic (and not a public safety hazard), whoever was doing the evaluation would have to have spent at least a bit more time around me, and hopefully seen that these prescribed medications, as far as I react to them, in no way interfere with the skills and aptitude necessary to fly a private plane.  I am much more pessimistic about that barrier.  People see medications and dosing, they rarely look at the effects on the person.  Playing devil’s advocate to myself, though, let’s say that while properly monitoring me over a year’s time, they waive the dependence issue.  That would also nullify the implications of “A verified positive drug test result.”

So I’m pretty golden at this point.  I’m cruising along, I’ve cleared nearly every roadblock.  All that I  have to do is keep steady-state for one year.  One year is not very long, when you’re looking at the span of the average life.  But when the longest period of stability which you can document for yourself is three months (that’s one-quarter of what’s being looked for, in case you didn’t think of it in those particular terms) – three effing months out of the 14+ years which I can identify as actively exhibiting bipolar, without question or doubt – three months non-symptomatic?  A year may as well be ten, or even an entire lifetime.

The End (except not completely, because I thought, What the hell, why not throw every disqualification that applies to me into this post?  It’s already twice the word count of an average post).

“A psychosis. As used in this section, “psychosis” refers to a mental disorder in which. . . [t]he individual has manifested delusions, hallucinations, grossly bizarre or disorganized behavior, or other commonly accepted symptoms of this condition. . .”  Been through that one before.

“No other personality disorder, neurosis, or other mental condition that the Federal Air Surgeon, based on the case history and appropriate, qualified medical judgment relating to the condition involved, finds—

“(1) Makes the person unable to safely perform the duties or exercise the privileges of the airman certificate applied for or held; or

“(2) May reasonably be expected, for the maximum duration of the airman medical certificate applied for or held, to make the person unable to perform those duties or exercise those privileges.”

Aside from the bipolar obvious – grandiosity, impulsiveness, impaired judgment, lack of insight, etc. – I also carry diagnoses for panic disorder and post-traumatic stress disorder.  When those bastards kick in, and they often do so without any apparent trigger or overt warning, you enter something akin to flight-or-fight mode (no pun intended) and cease to be able to think rationally or even follow simple directions.  Since I’m writing about flight, I’ll specifically draw your focus to the inability to rationally recall the basic mechanics of keeping a plane aloft and level.  You also lose most (if not all) of your ability to listen and focus and follow directions from (in this case) your co-pilot or the flight control tower.  I would bet on this paragraph alone, I would be classified as “. . . unable to safely perform the duties. . .”  Et cetera.

And because I am so obviously in a mood to guild the lily:  Though I do not carry a formal diagnosis of Impulse Control Disorder, I would bet anyone dollars to donuts that I am stuck with that one, too.  Maybe I don’t fit in the more extreme, often dangerous classifications, such as Kleptomania, Intermittent Explosive Disorder, or Pyromania (and for that I am grateful).  But my tattoos, my spur-of-the-moment cross-country road trips, and my credit card bills – along with a few other things I won’t detail – are vivid reminders that I consistently do things with an inexplicable internal driving force, and absolutely no thought to consequences.  I honestly believe I have never been diagnosed simply because I have never asked or been asked the appropriate questions about my habits and behaviors.  Or maybe I have and I’ve lied.

Just an FYI:  ”An Impulse Control Disorder can be loosely defined as the failure to resist an impulsive act or behaviour that may be harmful to self or others. For purposes of this definition, an impulsive behaviour or act is considered to be one that is not premeditated or not considered in advance and one over which the individual has little or no control.” (source, Forensic Psychiatry .ca)

Due to the fact that bipolar disorder and impulse control disorder occur so frequently together (co-morbidity), it becomes difficult to tease out the strands of which precipitated what.

That’s a very good behavioral profile for a pilot, isn’t it?

Oh, but merely look and you will see a faint light on the whole wanting to be a pilot thing, because that was what precipitated my deeply personal, cathartic, and largely self-punitive diatribe.  ”In determining whether an Authorization or SODA should be granted to an applicant for a third-class medical certificate, the Federal Air Surgeon considers the freedom of an airman, exercising the privileges of a private pilot certificate, to accept reasonable risks to his or her person and property that are not acceptable in the exercise of commercial or airline transport pilot privileges, and, at the same time, considers the need to protect the safety of persons and property in other aircraft and on the ground.”

Well damn, that clears the slate for me!  I’ll be flying high in two shakes of a lamb’s tail.

Moral of the story:  This is what is referred to as a ‘downward spiral.’  All of you got to read it as it happened.  You were here.  Now to find a way back up. . .

All regulations quoted above regarding medical certification for private pilots, disqualifying disorders and conditions, special considerations, exemptions, etc. – let’s just go with everything quoted but not sourced in the body of the post – can be found in more detail at the Electronic Code of Federal Regulations page.

***I wrote this post, in its entirety, in one sitting, with no interruptions at all over a period of a few hours, four days ago.  I didn’t publish it immediately (as is my usual method when blogging), because after I finished it, I was convinced that in re-reading it I would find it utterly nonsensical and potentially an exhibit of my own psychosis.  These fears grew with each day.  Today I decided to just face it, and was actually very relieved.  It needed basic editing for grammar and consistency of style, as all my posts do, but aside from that I didn’t have to alter anything.  I actually found it quite readable and easy to follow, though hardly one of my best posts (I do have an advantage as far as understanding, of course).***

© Ruby Tuesday and I Was Just Thinking. . . 2011. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Ruby Tuesday and I Was Just Thinking. . . with appropriate and specific direction to the original content. This work is protected under a Creative Commons Attribution-Non-Commercial-NoDerivs 3.0 Unported License.